I peeked out the window at the kids playing and saw this. It was so cute. I thought he couldn't reach the "go" pedal. He can't while seated, but he sat down like this.....
Hold ON!!! His sisters were worried and surrounded him to show him the ropes. So cute.
We visited with his endocrine team today. They are fascinated with our lifestyle, especially the nutrition aspect.
His number were good, even in April, so we'll retest and compare.
We discussed retesting the FISH test to verify 22q with a new sample. We decided not to do that in January when Isaac was mostly deaf because the insurance only covers hearing aids for genetic deafness and without the dx of 22q we'd have to pay 9K$ out of pocket. Yikes. Well, now he's not even a little bit deaf so the talk of retesting is now on the table again.
Endocrinology could not order it though, they said ask at our fall well baby check. Will do.
We can still do more at home to make our nutrition even better. Talk of cast iron tea kettles for the woodstove came up with a friend and they are not expensive! In December we'll retest Vit D and decide if we should use fermented cod liver oil and what dosage, but right now his levels are probably sun shiney wonderful and last winter (March) they only got as low as 18.
Good news, good news. We still have to go in for blood draws next week, on a Tuesday or Wednesday morning but Isaac is tough as nails and the lady who does the draw is really good at her job. That's why we insist on doing them at our local hospital, because of her. When you are in the midst of the chaos of special needs and medical care....finding those few people that are really there for you or your kid, that take time and extra attention, that is pretty special. Hang on to them. Let them know how very much appreciated they are.
A blog about farming, unschooling, feminism, 22q deletion syndrome, cooking real food, homesteading, permaculture, and motherhood.
Thursday, 2 August 2012
Monday, 30 July 2012
I
was recently given an old hat my grandfather wore when fishing. It's
not the one I remember him wearing, but I'm glad to have it. I also
have his pocket knife, and a bible. The pocket knife especially is
important to me, as it's one he probably took while we went fishing.
I remember him teaching me (very patiently) to tie a fishing knot, how
to cast, how to tell one fish from another, and how to clean the fish. I
don't remember a lot of what he actually taught me, but I remember him
patiently teaching me. Taking the time to help dissect the fish,
explain why the fish's heart was still beating after we were done, and
walking along the shore as I tried in vane to catch a fish with my hands
when they weren't biting.
I also remember him teaching me
about electricity - about positive and return wires, and how ground
worked, and about radio waves. Again - a lot of it was lost on someone
as young as I was, but I remember how cool it was to be learning,
and I remember him teaching me. I saw the greenboard and soldering
iron he used to build his radio boards, and sat through the explanation
on how transistors worked, why they were different than tubes, and how
the color coding worked. He had a 40 foot radio tower in the back yard
and he talked to people all over the world - it was facebook back when
you had to be hardcore to use it.
I also remember him patiently
explaining all of his medals to me time and again, every time I asked.
I don't remember what they were, but I remember him telling me. I also
remember the shrapnel he had pinned to the same board that had almost
killed him, from a blast that killed some of his friends and bunkmates.
He was a war hero, but he kept that, carefully mounted and framed,
buried in the bottom right hand drawer of an old desk in his radio room.
The first thing in my life I remember taking apart and fixing
for a reason other than curiosity was a doorknob. My Grandmother asked
me to look at it because my Grandfather had been working on it all day
and it was still broke. I took it apart and fixed it - my Grandfather
was stunned, and seemed very proud of me. I was too young to know what
alzheimer's disease was, but it was stealing him from me before I knew
how much he meant to me.
I will number the hat, the knife, and
the bible among my small treasures more important to me than just
things. And they will be passed to my children with all the knowledge I
can provide about the Great Grandfather who taught me to fish,
patiently answered questions, and read to me whenever I asked.
I miss my Grandfather. I wish I'd realized who he was when I had the chance.
Sunday, 22 July 2012
This week is going to be crazy fun. Apple harvest for livestock food, painting, peach canning, and farm tours.
This week I will finish hanging artwork in the master bedroom, finish the wall paint, maybe start the detail work.
I will start the custom bedframes for the girls. One sunshine and one moonglow. Those two really are night and day. Fitting for their room, I think.
I will start the mural in their room too. Not on the wall, but in draft. So far the draft has a HUGE willow or hawthorn tree with one side night sky and one side sunrise. Plants and animals galore. It is a huge wall. The night side will have a moon, stars, fireflies, bats, owls, moon flowers, and roses....the day side will have a sun, birds, butterflies, wild flowers.......Not super detailed, but mural style. It should be cool. Geez I hope so.
Then on the opposite wall they will have dressers and their play kitchen.
Isaac's room will be next. It already has it's base colour. I'm not sure what he likes yet. We may just go with fish and maps but I might do something else.....maybe a rocket ship and planets?
The hall still needs to be finished too.
I wish it was not so freakishly hot.
This week I will finish hanging artwork in the master bedroom, finish the wall paint, maybe start the detail work.
I will start the custom bedframes for the girls. One sunshine and one moonglow. Those two really are night and day. Fitting for their room, I think.
I will start the mural in their room too. Not on the wall, but in draft. So far the draft has a HUGE willow or hawthorn tree with one side night sky and one side sunrise. Plants and animals galore. It is a huge wall. The night side will have a moon, stars, fireflies, bats, owls, moon flowers, and roses....the day side will have a sun, birds, butterflies, wild flowers.......Not super detailed, but mural style. It should be cool. Geez I hope so.
Then on the opposite wall they will have dressers and their play kitchen.
Isaac's room will be next. It already has it's base colour. I'm not sure what he likes yet. We may just go with fish and maps but I might do something else.....maybe a rocket ship and planets?
The hall still needs to be finished too.
I wish it was not so freakishly hot.
Mother, wife, sister, friend. This is our second year on the farm, a dream we've had since we were first married. We unschool, AP parent, and grow our own food (or try to).
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