A blog about farming, unschooling, feminism, 22q deletion syndrome, cooking real food, homesteading, permaculture, and motherhood.
Friday, 3 August 2012
Snapshots of little bits of our day. We did a reading lesson, constructed words and sentences with letter tiles. molded modeling clay into pizza, read books, turned shipping boxes into to race cars, into drive in movie box/cars, into cozy reading boxes, pretended to be a girl pretending to be a vampire, played more dress up, cooked a new Chinese rice dish and baked chicken, registered for gymnastics (jumping class), dealt with a bath time crisis/fall injury/bloody nose, test drove a new to us car, kept the downstairs picked up and clean, and did laundry.
Oh and video chatted with newly moved to CA friends.
Today (despite the bloody nose crisis) was good and full.
*These pictures were taken with my new iPhone that can do video chat, take credit cards, and enable me to be on facebook more than I need to be all the freaking time. There is no focus or zoom. I think I like my SLR camera better, but the phone is super convenient.
Thursday, 2 August 2012
Zippy Zippy Zap
I peeked out the window at the kids playing and saw this. It was so cute. I thought he couldn't reach the "go" pedal. He can't while seated, but he sat down like this.....
Hold ON!!! His sisters were worried and surrounded him to show him the ropes. So cute.
We visited with his endocrine team today. They are fascinated with our lifestyle, especially the nutrition aspect.
His number were good, even in April, so we'll retest and compare.
We discussed retesting the FISH test to verify 22q with a new sample. We decided not to do that in January when Isaac was mostly deaf because the insurance only covers hearing aids for genetic deafness and without the dx of 22q we'd have to pay 9K$ out of pocket. Yikes. Well, now he's not even a little bit deaf so the talk of retesting is now on the table again.
Endocrinology could not order it though, they said ask at our fall well baby check. Will do.
We can still do more at home to make our nutrition even better. Talk of cast iron tea kettles for the woodstove came up with a friend and they are not expensive! In December we'll retest Vit D and decide if we should use fermented cod liver oil and what dosage, but right now his levels are probably sun shiney wonderful and last winter (March) they only got as low as 18.
Good news, good news. We still have to go in for blood draws next week, on a Tuesday or Wednesday morning but Isaac is tough as nails and the lady who does the draw is really good at her job. That's why we insist on doing them at our local hospital, because of her. When you are in the midst of the chaos of special needs and medical care....finding those few people that are really there for you or your kid, that take time and extra attention, that is pretty special. Hang on to them. Let them know how very much appreciated they are.
Hold ON!!! His sisters were worried and surrounded him to show him the ropes. So cute.
We visited with his endocrine team today. They are fascinated with our lifestyle, especially the nutrition aspect.
His number were good, even in April, so we'll retest and compare.
We discussed retesting the FISH test to verify 22q with a new sample. We decided not to do that in January when Isaac was mostly deaf because the insurance only covers hearing aids for genetic deafness and without the dx of 22q we'd have to pay 9K$ out of pocket. Yikes. Well, now he's not even a little bit deaf so the talk of retesting is now on the table again.
Endocrinology could not order it though, they said ask at our fall well baby check. Will do.
We can still do more at home to make our nutrition even better. Talk of cast iron tea kettles for the woodstove came up with a friend and they are not expensive! In December we'll retest Vit D and decide if we should use fermented cod liver oil and what dosage, but right now his levels are probably sun shiney wonderful and last winter (March) they only got as low as 18.
Good news, good news. We still have to go in for blood draws next week, on a Tuesday or Wednesday morning but Isaac is tough as nails and the lady who does the draw is really good at her job. That's why we insist on doing them at our local hospital, because of her. When you are in the midst of the chaos of special needs and medical care....finding those few people that are really there for you or your kid, that take time and extra attention, that is pretty special. Hang on to them. Let them know how very much appreciated they are.
Monday, 30 July 2012
I
was recently given an old hat my grandfather wore when fishing. It's
not the one I remember him wearing, but I'm glad to have it. I also
have his pocket knife, and a bible. The pocket knife especially is
important to me, as it's one he probably took while we went fishing.
I remember him teaching me (very patiently) to tie a fishing knot, how
to cast, how to tell one fish from another, and how to clean the fish. I
don't remember a lot of what he actually taught me, but I remember him
patiently teaching me. Taking the time to help dissect the fish,
explain why the fish's heart was still beating after we were done, and
walking along the shore as I tried in vane to catch a fish with my hands
when they weren't biting.
I also remember him teaching me
about electricity - about positive and return wires, and how ground
worked, and about radio waves. Again - a lot of it was lost on someone
as young as I was, but I remember how cool it was to be learning,
and I remember him teaching me. I saw the greenboard and soldering
iron he used to build his radio boards, and sat through the explanation
on how transistors worked, why they were different than tubes, and how
the color coding worked. He had a 40 foot radio tower in the back yard
and he talked to people all over the world - it was facebook back when
you had to be hardcore to use it.
I also remember him patiently
explaining all of his medals to me time and again, every time I asked.
I don't remember what they were, but I remember him telling me. I also
remember the shrapnel he had pinned to the same board that had almost
killed him, from a blast that killed some of his friends and bunkmates.
He was a war hero, but he kept that, carefully mounted and framed,
buried in the bottom right hand drawer of an old desk in his radio room.
The first thing in my life I remember taking apart and fixing
for a reason other than curiosity was a doorknob. My Grandmother asked
me to look at it because my Grandfather had been working on it all day
and it was still broke. I took it apart and fixed it - my Grandfather
was stunned, and seemed very proud of me. I was too young to know what
alzheimer's disease was, but it was stealing him from me before I knew
how much he meant to me.
I will number the hat, the knife, and
the bible among my small treasures more important to me than just
things. And they will be passed to my children with all the knowledge I
can provide about the Great Grandfather who taught me to fish,
patiently answered questions, and read to me whenever I asked.
I miss my Grandfather. I wish I'd realized who he was when I had the chance.
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