Hold ON!!! His sisters were worried and surrounded him to show him the ropes. So cute.
We visited with his endocrine team today. They are fascinated with our lifestyle, especially the nutrition aspect.
His number were good, even in April, so we'll retest and compare.
We discussed retesting the FISH test to verify 22q with a new sample. We decided not to do that in January when Isaac was mostly deaf because the insurance only covers hearing aids for genetic deafness and without the dx of 22q we'd have to pay 9K$ out of pocket. Yikes. Well, now he's not even a little bit deaf so the talk of retesting is now on the table again.
Endocrinology could not order it though, they said ask at our fall well baby check. Will do.
We can still do more at home to make our nutrition even better. Talk of cast iron tea kettles for the woodstove came up with a friend and they are not expensive! In December we'll retest Vit D and decide if we should use fermented cod liver oil and what dosage, but right now his levels are probably sun shiney wonderful and last winter (March) they only got as low as 18.
Good news, good news. We still have to go in for blood draws next week, on a Tuesday or Wednesday morning but Isaac is tough as nails and the lady who does the draw is really good at her job. That's why we insist on doing them at our local hospital, because of her. When you are in the midst of the chaos of special needs and medical care....finding those few people that are really there for you or your kid, that take time and extra attention, that is pretty special. Hang on to them. Let them know how very much appreciated they are.
No comments:
Post a Comment
A blog about farming, unschooling, feminism, 22q deletion syndrome, cooking real food, homesteading, permaculture, and motherhood.