Eat the Frog

Someone recently asked me if Isaac actually has a disability, and the answer is yes and no and yes and maybe and I don't really know....

Lily and Holly are in the church holiday pageant. When they found out that other three year olds are too, but not Isaac (because he isn...

And do not be grieved, for the joy of the LORD is your strength .....Nehemiah 8:10 Yesterday a little girl with 22q deletion syndrome died....

Isaac had so much fun that we bought a membership and plan to go back every other week as weather allows. Happy birthday b...

Caramel Latte is one of my favourite all time drinks. The one in the picture had way, way too much syrup and it was clearly not real caram...

 A really insightful discussion this week, jumping off of this article, got me thinking. Appearances matter in ways that are more complex t...

There is no delicate way to write this. There is no flowing prose to soften this blow, to make everyone feel better about this not talked ab...

I remember the day that Isaac's diagnosis was given to us over the phone. It was unexpected even though there had been problems that had...

Today Isaac had his blood drawn for labs. This is one of the regular parts of our routine. 22q can mess up blood chemistry in some messed ...

Grief. Anger. Joy. Fear. Love. Hope. How is it possible to feel all of these all at the same time? I am not sure. Sometimes when I look ...

Lots of children catch caterpillars, lots of families let them keep them in a tank. We do this every year and they often hatch the...

Running . I have a long and complicated, even stormy relationship with running. I often joke that if you ever see me running, don't as...

Isaac is adorable. It is his super power. He doesn't throw tantrums. He begs sweetly instead and no one in this house can resist his sig...

Which one is more full? Can you tell by looking?  Nope.   One of the things I found myself doing as a new mom when Lily was born was I...

One of the things that being in the between of these worlds affords me is a perspective that is different from either extreme. This pers...

post vaccine rash, fever, and lethargy Part of 22q11 syndrome is immune system deficiency. Isaac seems to have a thymus and a function...